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Remission - but still RA poorly Options
Angiecha
#1 Posted : Monday, January 13, 2014 2:54:56 PM Quote
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Joined: 9/5/2010
Posts: 185
Location: Lowestoft, Suffolk
Have been getting to the gym OK and improving my mobility. Unfortunately a couple of the exercises are aggravating my hands. Am going to stop the hand bike and use the cross trainer without the arm action.

Was going to go tonight - had to miss yesterday as my hands were too bad from Saturday's session. Sad

Don't know if it is related but my joints (all over) are playing up today. Not intense pain but that really nagging, unpleasant, sore ache and fizzing. Little bit of dizziness too so I guess it is no to the gym tonight.

Had a stressful journey Thursday so it could be a delayed reaction to that as well.

Always get nervous of a flare when my joints start up, sometimes it goes away with rest and other times it is a full on pain and fatigue attack. Scared

I know I am blooming lucky to be in remission and to be able to get about, still not pain/ache/fatigue free though.

Here's hoping I just need rest tonight. Confused

Angie
Be yourself - everyone else is taken. XX
Paul Barrett
#2 Posted : Monday, January 13, 2014 5:16:41 PM Quote
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Joined: 4/24/2013
Posts: 703
Location: Hexham
It's a dilemma isn't it? Need to keep exercised but exercise hurts. Should you work through the pain (no pain no gain) or does doing so wreak more damage to joints?
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
suzanne_p
#3 Posted : Monday, January 13, 2014 7:34:35 PM Quote
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Joined: 8/25/2010
Posts: 1,289
Location: Buckinghamshire
i often wonder what remission does really mean to different people.

i know they do DAS Scores, joints, bloods etc.

i've been in remission a good 18 months now .. but i do know just how far i can push myself, and i'm not in the position to walk far due to Osteo in both knee's,

Fatigue i would say causes me the most symptoms ( but not a good sleeper ) so that plays a part.

being told you are in remission .. does that make you push yourself more?

but other than above i do feel fine, never take pain killers never have actually. mind my meds list is long enough, but am fortunate there.

hope you feel better soon,

Suzanne
Angiecha
#4 Posted : Tuesday, January 14, 2014 10:40:40 AM Quote
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Joined: 9/5/2010
Posts: 185
Location: Lowestoft, Suffolk
Still feeling pretty rubbish, was a struggle to get to work this morning, 1 & half hours later in than normal because I couldn't get moving.

Currently fatigued, dizzy and emotional but little pain.

I'm wondering whether it is stress induced on this occasion. Despite a good journey back from Sheffield to Lowestoft (5 hours) I then had a contratemps with the bus driver who said he was going my way but I ended up with a long walk home as he didn't get anywhere near where I wanted. He also shouted at me as if I was an idiot for now knowing where his bus was going. (A letter of complaint has been sent).

I definitely need to keep up the gym when able as my weight is out of control and my joints really need to move.

Having a little fight with my mood now. Sad

Feels horrible writing miserable posts but it seems to help.

Angie
Be yourself - everyone else is taken. XX
Paul Barrett
#5 Posted : Tuesday, January 14, 2014 11:08:35 AM Quote
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Joined: 4/24/2013
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Location: Hexham
Angiecha wrote:


Feels horrible writing miserable posts but it seems to help.

Angie


Hey - if you can't say it here, where can you say it? It's one of the reasons we're here.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
jewelsh
#6 Posted : Tuesday, January 14, 2014 7:48:44 PM Quote
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Joined: 9/15/2013
Posts: 125
Hi Angie
Sorry to hear you are feeling rubbish and having a fight with your mood too!
Listen to your body though and go easy on yourself. A little time away from the gym won't harm until you're feeling more on top of things again.

Hugs
Julie x
Jane.
#7 Posted : Tuesday, January 14, 2014 9:34:53 PM Quote
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Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
Hello Angie

Sorry you are feeling awful/pants or any other polite words.
I got to the gym, not easy but I do it because I'm cheesed off with rheumy/surgeon saying I'm heavy/fat/putting strain on my body.
Before I had ra I was thinner, fitter and a gym bunny.
It is so frustrating having pain, pain constantly there squeezing your joints to remind me Ive got ra.

I feel that I have to make extra efforts to do the simples of lifeRollEyes
I'm sorry if it feels like I'm moaning but none ra people get it.

Defiantly not in remission, but I'm mobile and walking unaided so that is a bonusThumpUp

Try gym gloves for better grip (so much easier) I got mine for under £5.00 from sports direct shop.

Please try not to beat yourself up.....go with your body.
Jane
Xxx
Angiecha
#8 Posted : Wednesday, January 15, 2014 9:13:45 AM Quote
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Joined: 9/5/2010
Posts: 185
Location: Lowestoft, Suffolk
Thanks All

I went home sick yesterday at 2.30. Thankfully my manager is very understanding although our Department frowns on sickness and is desperately trying to reduce it. I left early the previous day (we work to flexi time) to head off the flare but it didn't work.

Jane: It isn't the grip that causes the problem with my hands in this programme, it is the push & pull action. There's the hand bike and cross trainer that causes most pain. I also have carpal tunnel syndrome which doesn't help. Thanks for the advice though, I do have gloves from when I also was a gym bunny, was into weight lifting and considerably lighter than now! I could even go running. And just like you am told my weight is an issue. (I've been overweight all my life though).

Feeling a whole lot better today Smile, will decide later whether I am well enough for the gym but suspect I need to give myself another day's break just in case. Hands, especially wrists are still giving me what for.

Thanks for your support in this very short lived fatigue flare - wish you all were so lucky to have tolerable levels of pain/discomfort with occasional short lived flares.

Normal service will now be resumed until the next attack. LOL

Angie
Be yourself - everyone else is taken. XX
Angiecha
#9 Posted : Monday, January 20, 2014 1:51:02 PM Quote
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Joined: 9/5/2010
Posts: 185
Location: Lowestoft, Suffolk
Jinxed myself!

Went to the gym Saturday. Did 10 minutes on the bike, went on to the cross trainer only to find I had no energy left.

Sunday had to really pace myself - washing out - rest - wash up - rest - pick up some leaves in garden - rest.

Did find out they do eyebrow threading at the salon in the gym though so booked in for Wednesday.

ThumbDown ThumpUp
Be yourself - everyone else is taken. XX
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